February is Marfan Awareness Month
Title: Rubber Band Girl
Synopsis: When Jennifer Nielson's daughter, Hadley, is diagnosed with Marfan’s syndrome, a potentially fatal ligament disorder characterized by extreme height and joint flexibility, Jennifer is heartbroken. She soon discovers that events from Hadley’s early years and her own past have prepared her to face these obstacles head-on. Through trials large and small, Jennifer marvels at Hadley’s resiliency, consistent maturity, and sunny outlook on life epitomized by Hadley’s mantra: "I’m not tall. Everyone else is just short!"
Anyone who has experienced life's unexpected twists and turns will relate to this inspiring memoir, including parents with children suffering from disabilities. Readers will root for young Hadley as she navigates the uncertain path before her and challenges her physical limitations with an unbreakable spirit and a belief that no dream is beyond her reach.
Author Bio: JENNIFER BARNEY NIELSON has always considered writing therapeutic, which is demonstrated by a large collection of journals she still has dating back to kindergarten. She graduated Summa Cum Laude from Arizona State University with a degree in elementary education. A self-proclaimed "recovering" perfectionist, she has learned to fuse her creativity and energy to produce a successful home-based interior design business, teach music, travel the world, and raise a family. She and her husband, Talan, have five children and live in Gilbert, Arizona.
"This beautifully written book will touch the hearts of all parents, especially those who have children with special needs."
--Shawni Eyre Pothier, author and National Young Mother of the Year, 2011