February is Marfan Awareness Month
Title: Rubber Band Girl
Synopsis: When Jennifer Nielson's daughter, Hadley, is
diagnosed with Marfan’s syndrome, a potentially fatal ligament disorder
characterized by extreme height and joint flexibility, Jennifer is heartbroken.
She soon discovers that events from Hadley’s early years and her own past have
prepared her to face these obstacles head-on. Through trials large and small,
Jennifer marvels at Hadley’s resiliency, consistent maturity, and sunny outlook
on life epitomized by Hadley’s mantra: "I’m not tall. Everyone else is just
short!"
Anyone who has experienced life's unexpected twists and
turns will relate to this inspiring memoir, including parents with children
suffering from disabilities. Readers will root for young Hadley as she
navigates the uncertain path before her and challenges her physical limitations
with an unbreakable spirit and a belief that no dream is beyond her reach.
Author Bio: JENNIFER BARNEY NIELSON has always considered
writing therapeutic, which is demonstrated by a large collection of journals
she still has dating back to kindergarten. She graduated Summa Cum Laude from
Arizona State University with a degree in elementary education. A
self-proclaimed "recovering" perfectionist, she has learned to fuse
her creativity and energy to produce a successful home-based interior design
business, teach music, travel the world, and raise a family. She and her
husband, Talan, have five children and live in Gilbert, Arizona.
Praise:
"This beautifully written book will touch the hearts of
all parents, especially those who have children with special needs."
--Shawni Eyre Pothier, author and National Young Mother of
the Year, 2011
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